Maharashtra: Vedika Shinde, a  baby girl from Pune who was diagnosed with SMA Type- 1, a rare genetic disease, had died. Despite many efforts and medical treatments, this tragedy could not be averted. The baby girl was admitted to the hospital on Sunday, August 1, after she faced abrupt trouble in breathing and died during the treatment. Notably, Vedika was administered with a Zolgensma vaccine worth Rs 16 crore as a part of treatment to save her life. The funds for the same were raised through crowdfunding. 

Vedika was only eight months old when she contracted Spinal Muscular Atrophy. Her parents, determined to save her, faced the situation bravely and patiently and arranged a sum of Rs 16 crore to get the required injection for her treatment. People across the globe contributed their bit to save the baby girl. However, she could not be saved even after getting the vaccine and died a month later.

Let us tell you that SMA 1 or Spinal Muscular Atrophy 1 is a rare genetic disease that affects the nerve cells that control voluntary muscles or motor neurons in the human body. The disease primarily affects infant children. The condition can be treated with gene replacement therapy which involves a huge cost. The vaccines for the disease are only manufactured in the US, Japan, and Germany.

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